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Re: Python versions and privacy of medical records was Re: [LUG] Continuing search for a better mail client



> Okay the script snippet you gave worked fine on my Debian Woody
> box, stable distro, which is Python 2.1.3, ldapobject v 1.18
> (dated 2002/02/02), and openldap (rats the laptop battery just
> died but 2.0.23 I think - email if this is important).

> eg l = ldap.initialize() versus ldap.open()

OK, it may be the implementation of LDAP which is on another box.  I'll look 
harder at that end.

> Iterating over the search results to print them out was beyond
> my (non-existent) python skill, 


> Curiously one of my friends is now working on a project at NHSIA
> to build something on top of the planned patient records system,
> I did ask what their plan was if the patient record system never
> happens - my cynicism wasn't appreciated.

It would be nice if certain open source groups were in a position to offer a 
fallback suggestion on that.

> Has anyone actually asked what proportion of patients want to
> have their records securely transferred, as a lot of security
> effort could be saved for those of us who aren't overly
> concerned over the privacy of the data

Yes.  Depending who you are and what you would like to be the result the 
answers reported are divergent.

I think that most people feel that most of their records are not sensitive as 
far as getting them to most doctors and nurses with whom they have, or at a 
pinch _have had_ or _may have_ clinical contact with.

However many people feel there might be some things they don't want easily 
leakable, occasionally or in unlikely circumstances, and a considerable 
plurality felt that the first efforts at a provacy policy:-

"Your notes can only be accessed by members of the NHS family"
NHS family = 1 000 000 people working in the NHS

"Sometimes the NHS will be liasing with social services and other agencies 
and your notes will only go that far.."
Getting a bit loose there...

> ... being treated by someone who has my medical record is
> more important to me). 

There was the Exmouth Care Card trial a few years ago - well, finished 1990 I 
think.  The Honeywell Bull cards didn't have enough storage space then, but 
do now, to keep a set of results, a list of medication and a summary on for 
instance.  I favour smart arse technology - a chip in the buttock read and 
written through a loop antenna in the patient chair - but there are a few 
problems with it.

> At least I'm not sure I'd want to be the first person to have my
> records spread on the Internet for all to see, 
How about encrypted with a 4096 bit key by GNU PG and you carry the private 
key required around with you as a bar code?  

The actual deliberate sabotage of any encryption project outside the inner  
club of powerful ministries (DoH isn't powerful, not in that sense) is 
thought to have ceased, however the knowledge that interest in the use of 
encryption, coupled with apparent understanding of it leads to career 
malprogression had become ingrained into the managerial culture in the manner 
of the experiment with the monkeys, bananas step ladder and firehose, and the 
behaviour persists to this day.

> What was it Scott McNealy say "privacy is dead, get over it" ?

You have _no_ privacy.  Get over it!  was how I recalled it, but the top 
quote on it seems to be "You have zero privacy anyway -- get over it," Scott 
McNealy told a group of reporters and analysts Monday night at an event to 
launch his company's new Jini technology.

"Privacy is dead, deal with it " is also visible.

It is fair to say that this did not meet with universal agreement nor 
approval, and that his nickname no doubt affectionate appears to be "the 
mouth".
-- 
From one of the Linux desktops of Dr Adrian Midgley 
http://www.defoam.net/             

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